Wednesday, November 25, 2015

Rainy Family Day

The University presented a Family Day during the Film Festival. There were lots of events in which to participate, but the day was very rainy and it was crowded inside the building.

I wanted to take the kids especially for the instrument Petting Zoo--where kids could get up close and personal with different instruments and students that play them. Vivian tried almost every one, and got a sound out of everything she attempted except the trumpet. Elena didn't have as much luck; her mouth muscles and breath support are not as strong. She still enjoyed trying, and especially liked the cello.

Testing the Cello

Playing the Trombone!

Playing in the rain

A blog reader recently commented on what we do in rain, given Elena only has one pair of shoes, really. I found a pair of "overshoes" on and they work beautifully in rain! There are several styles available, but the sizing is questionable. Elena wears a size 2.5 New Balance shoe, and the size overshoe we bought is a size "S/M". The overshoes are not high quality, and they are hard to get on/off but they do work well for our purposes. This has been the first time E could really stomp/splash in a puddle!

Her umbrella hat continues to be of good use also. The attachments on the head band are a little uncomfortable, so I think I"ll be making some changes by sewing on a sweatband of sorts.

Rain Ensemble

Another change of note: look at her crutch tips. These are called Flexy Foot crutch tips, and they are awesome! For some reason, Elena has been wearing through her regular crutch tips--about 3 pair per month. She's been growing, and I hadn't realized this wear and tear with her last pair of crutches, but it is what it is. These Flexy Foot crutch tips have lasted over a month, are still in great shape, and have helped ease her fatigue while getting around on crutches. They are expensive; I bought them for $35.00 per tip (they do have replaceable end caps, which I haven't had to buy yet) but right now, I think it's worth the cost.

Pre-Thanksgiving Round-Up

Life has been good here. Girls are busy with school (Elena is working hard, and getting great grades!) and Vivian has her own activities--gymnastics and violin. I knew she was getting weary of "going to all Elena's appointments", so I've managed to carve out some time by picking the kids up from school and by fitting in a few activities for Viv during E's therapy time. It's a constant but rewarding juggle.

Here is what we've been up to in the last month!

Graves Mountain Lodge

We met up with Grandma and Grandpa at Graves Mountain. It's a beautiful place, nestled in a beautiful valley that's absolutely breathtaking during Fall Foliage season. We missed the dazzling colors by a week--but it was still fun.

With Grandma at the booths

Dad and his girls

Models after chase in the grass

Hay Maze was great fun!

The best parts were the apples and the Hay Maze--it was the first maze the kids have been in that we didn't have to be with them. Most parents (not me) could see over the bales well and find their kids if they were gone for too long. The maze was challenging, the kids loved it, and they both eventually escaped!

Vivian's 7th Birthday

Vivian chose "Interstellar Cinderella" as her birthday party theme this year. It's a space-age, tinkering, empowered-girl spin on a Cinderella story. Her friends had lots of dress up options--princess, fairy, with some space-steampunk accessories to jazz things up. (I spent a lot of time making the Space Goggles...a lot of time.) They were tasked to work together to make a robot, then program the robot (Jason in the designed robot "suit") to rescue cupcakes abducted by rogue space aliens in their spacecraft (cardboard spaceship outside). Then it was fort-making, running around playtime. Elena did a fantastic job as a guide--she really helped the younger kids work collectively without giving them too much instruction--a very mature role that she did very well.

Assembling the Dad-Bot

Spaceship on the move!

Vivian enjoyed her party. Her big present, now that she is SEVEN, was she got her ears pierced! She loves them. She did have to get one ear re-peirced, as she ripped out an earring (just ripped the post off, did not rip her earlobe) while taking off a bike helmet. The other big deal about being seven is she has a mouthful of loose teeth...I expect most of them to be out by the end of the year!


Viv's party was actually celebrated on Halloween, so it ended up being a pretty busy day. After the party we put together the kids' costumes. Vivian wanted to be "regular" Cinderella (using a dress-up we had) and Elena originally wanted to be Inspector Gadget, but I didn't have the time to put that together. Instead, she chose a minion--which was great, b/c we put a pair of Space Goggles to good use!

E as Minion

Bubble Adventure

I had an idea of making huge bubbles for a long while now, but haven't been able to walk well enough to try it. Now that I can, we set out on a Big Bubble Experiment before the weather turned really cold. We set out at a nearby park, mixed our ingredients, and voila!

Photo credit: Elena

Photo credit: Vivian

It was a little too windy for making huge bubbles--they could have been the size of cars, but I couldn't close the bubble in time. My arms/hands were exhausted after making bubbles for over an hour (the wands are huge poles)...I'll have to make some changes next time to try to conserve energy and lighten the weight. The kid not chasing bubbles was the photographer--Elena really enjoyed it!

Tuesday, October 20, 2015

Pumpkin Patch 2015PP

Every year we trek to Belvedere Plantation for the Fall Festival. We LOVE IT.

We made a few changes this year...we decided to meet up with our friends The Cs in the afternoon (we typically get there when they open in the morning) and try to stay until evening fireworks. We packed warm clothes, and expected tired kids after it was all over. We debated bringing E's wheelchair or our double stroller (it's really too small for the kids, but it can really help on tough terrain) and decided that walking was really the best way to get around. The plantation is so bumpy E's chair would have been a tough choice.

Sunflower picture! (it was too sunny for *someone*)


Tractor Girls
Another change this year was we free-roamed. This wasn't a conscious decision until we arrived; the girls didn't want to go where we suggested, so we followed their lead. This resulted in more walking overall and less energy as the day continued--but everyone was having fun, so it didn't matter if we didn't do every activity we had initially anticipated.

Soft fall 
Elena loved the Hay Barn. She loves to swing on the rope and navigate the deep hay, even though she needs a good amount of help. It was busy in there! Jason was a big helper in the Barn.

Bouncin' around

 A surprise hit was the Corn Pit. It was new this year, and everyone--kids and grown ups--spent a lot of time in there! We brought lots of "surprise corn" home.

Corn Swim

Corn Spa Treatment (so says Vivian)

An unprecedented event, three out of four of us got picked as Pig Pals for the Pig races. We've tried in  years past, but never got selected--and this year, three of us?  That's right! Elena and Vivian's pigs did not win...but Jason's did, and he won a Pig Nose!

Go Blue Pig!

Vivian is just a little happy

The Winner!
 Navigating the Pumpkin Patch is always difficult, the vines make for easy tripping. Elena only fell once! Everyone managed to find their perfect pumpkin.


Happy faces 

Pumpkinas--Vivian on her toes here
As it turns out, it wasn't worth staying for fireworks. We got very cold and had to stay next to a fire to stay warm. Some of the attractions we were hoping to go visit later (zipline, etc.) were not lit, and we were too cold and tired to walk to the ones that were under night lights. The fireworks were pretty, but next time we'll opt for the earlier shift! 

Welcome Fall (Apple picking)

We love fall! Fall brings apples, pumpkins, long sleeve shirts, leaves, and lots of festival opportunities!

Since I have a lot to post, I'll make this short. We kicked off the apple season with our family friends, the Cs. The mountain orchard involves a lot of hilly walking, which is a challenge for Elena and myself. Everyone was pretty tired after picking (you have to walk a long way to get to the apples!).


Viv found a good one!

Perfect Pick

Apple Girls
I thought we'd have too many apples, and have to make apple butter, applesauce, and apple muffins. WRONG. These kids ate them all before they had a chance to be cooked. We'll have to go back!

Late Summer Round Up

I realized I didn't get around to posting these...

Albemarle Ciderworks

We had the chance to celebrate late summer with some friends at a local cidery. They have live folk music, and we enjoyed the early evening with a picnic dinner while the kids ran around the field (lots of other families were doing the same). We saw a child with what looked like a large leaf--and explored the nearby pond...which was full of giant lily pads!

Crazy on the dock
Lily Cape!

Lily Hat
Lily Umbrellas
Viv's Lily Nap

The kids loved them so much I let them bring the lily pads home and we kept them in the bathtub. They enjoyed bringing them to school to share!

Crabtree Falls

It was so beautiful outside, we tried to find a short hike. We drove through the mountains and found a short (but very steep!!) location. It had a trail, but sometimes you had to hike over serious rocks (harder for me than Elena). There were tons of stairs near the waterfall, but still very treacherous. We made it 2/3 of the way to the top, and decided that was enough.

Going Down

So happy

Monday, September 21, 2015

5th Grade Field Trip

Hooray for the first field trip of the year! Elena's school went to a nearby camp for a challenge course day. Her team and I tried to plan the best we could--but the camp would not give us specific information as to the day's schedule and terrain. Parents were asked specifically not to come as chaperones. Two days before the trip, I called the camp and tried to get my questions answered--they were not concerned about Elena's mobility. I have been to that camp. Their idea of accessibility is great, if you can walk. The terrain is steep everywhere, nothing is paved, and the "ramps" are either mulch, gravel, or woods, with scattered steps. The staff seemed to think I was worried about Elena handling the challenge elements; I was concerned about traveling to and in-between them--they are between 300 and 600 feet apart, through hills and woods. They assured me if Elena got tired or complained of pain they could put her in a wheelbarrow. I was not pleased. I told them to expect me at the field trip, which they were happy to oblige. E's teacher was happy I'd be there. I packed everything I could think of--wheelchair (although I figured we wouldn't be able to use it), foldable step stool for her to take sitting breaks, water, her adventure vest (in case she wanted to carry small things), and thought I'd offer piggyback rides if she preferred that over the wheelbarrow if she got tired (wasn't sure how that would go, given my bad knee, but I'd manage).

Thursday morning I went to leave to meet them at the camp...and couldn't find my keys. Couldn't find them--looked everywhere...and figured, well, I'll just have to get to the camp when I can. After a very long, emotional hour, I did find them. I finally arrived to meet up with E at the second station. The terrain is no joke--completely wheelchair inaccessible, and very challenging for a knee reconstruction patient.

Elena was fine. I put her neoprene pads on her crutch handles--helps cushion her palms, but they are too hot for everyday use. She liked that, but didn't want the stool or any other assistance. She was relieved I was there (she was expecting me), but was happy to tell me she did not need my help.

She didn't need me all day. I mean, I gave her a sip of water every now and then. But mostly I was available, but invisible and unnecessary--the best kind of field trip chaperone, right???

The students had lots of problem solving as a group for their challenges. They had to think things through as a team, and it was really awesome to see them succeed. All the challenges had a physical element, and Elena was not involved in carrying anything--but she seemed content to be a part of the team and had her ideas heard, she was not afraid of speaking up. She never fell, and even though she lagged behind walking between elements, I did not get the impression that she was left out.

Unfortunately the challenge elements weren't mapped out around the camp to minimize walking. This would have been really helpful for everyone, especially Elena. She was tired, and her group ate lunch last. Her group was also last on the biggest challenge, the climbing structure.

She went last in her group--which was fine, she got a nice sitting rest and ate a good lunch. I taped her hands (we learned she gets blisters very easily during her climbing study this summer, so I made sure to bring some) and made sure her harness and helmet fit (she's the smallest student). The climbing structure itself was too large for her--I knew she would need extra assistance on belay since she could not reach some of the climbing obstacles. The counselors told each group if they wanted to do the zipline (!) they would have to get to the top.

Climbing, determined and brave

There is a "catch rope" you have to drop near the end of the zip line. If you forget to drop it, the zipper would hit the rubber stop on the line (perfectly safe, but not as comfortable) and then each student was helped down by a ladder. I was worried that E would forget to drop the rope (she didn't), but just took a deep breath and decided she was more like her classmates than unlike them, and waited.

Look at that smile!

She walked back, the last zip liner, a triumphant look on her face! I was stunned she made it the whole day (I even left early). She really didn't need me (last year this would have NOT been successful). She did not complain of knee pain after school, despite being absolutely exhausted.

Wins all around!